A wonderful tribute to a brave woman and all our loved ones who suffer from this devastating disease
Blurb:
Following a traumatic incident at work Stewardess Hanna Korhonen decides to take time off work and leaves her home in London to spend quality time with her elderly parents in rural England. There she finds that neither can she run away from her problems, nor does her family provide the easy getaway place that she has hoped for. Her mother suffers from Alzheimer’s disease and, while being confronted with the consequences of her issues at work, she and her entire family are forced to reassess their lives.
The book takes a close look at family dynamics and at human nature in a time of a crisis. Their challenges, individual and shared, take the Korhonens on a journey of self-discovery and redemption.
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Note from the author
Alzheimer’s
Disease
My
book is inspired by personal experiences with sufferers from the disease.
Nowadays, almost everyone knows someone who has relatives with Alzheimer’s Disease
and gradually stories and anecdotes about these patients have entered the
social dinner party circuit and become common knowledge.
Alzheimer’s
Disease is a dreadful disease that cannot be easily understood in its gravity
and the complex, frustrating and far reaching consequences for the victims and
their families. There are different stages of the disease as it progresses and
patients can move through them at different paces and in varying intensity. My
book does not attempt to be a complete representation or a manual of how to
deal with the disease. The illness affects every patient differently and there
are many stories to tell and many aspects to cover. I hope that I can bring
some of those issues to the surface and help to make the gravity of the disease
more prominent. I did, however, decide to stay firmly in fiction and family
drama territory, and not to write a dramatized documentary on the subject.
I
have witnessed several different approaches to handling the disease by both
individuals and entire families, and I have learned that the people involved in
every case needs to work out what is best for them. In my book, a family work out their particular
approach, which is right for them. They have different ideas about it and need
to battle it out. These clashes fascinated me and I felt they were worth
exploring.
Issues
of caring at home, mobile care assistance or institutionalising patients are
personal and, depending on where in the world you are, every family has very
different options or limitations. The ending in my book must be seen in that
context: as an individual ‘best’ solution that uniquely fits the Korhonen
family.
As point of first reference and for a more comprehensive and scientific overview of information and help available I recommend: http://www.alzheimers.org.uk/ in the UK, and http://www.alz.org/ in the US.
As point of first reference and for a more comprehensive and scientific overview of information and help available I recommend: http://www.alzheimers.org.uk/ in the UK, and http://www.alz.org/ in the US.
There are support groups, helplines and many other sources available in most
countries. These will be able to advise specifically for each individual situation.
I can also recommend “Because We Care” by Fran Lewis. This fantastic book has a comprehensive appendix with more or less everything you need to know about the disease: Its stages, personal advice on caring, information, tools and help available in the US.
I can also recommend “Because We Care” by Fran Lewis. This fantastic book has a comprehensive appendix with more or less everything you need to know about the disease: Its stages, personal advice on caring, information, tools and help available in the US.
For
consistency, I exclusively used material relating to a medium advanced stage of
the disease. To protect the privacy and dignity of the patients that inspired
the story I have altered all of the events and used both first and second hand
experiences and anecdotes. Nothing in this book has actually happened in that
way. Apart from some outer parallels between my characters and patients I
witnessed, any similarities with real people, alive or dead, are coincidental
and unintended.
“The
Real Biddy Korhonen”
I
grew up with only a few friends and with two older siblings who were miles
ahead of me in their lives. My mother was a busy woman and so I spent a lot of
time at my aunt’s house. She had always wanted to have four children but lost
one child at birth. Her other three children were much older and didn’t need
her much anymore, so my visits to her house filled a gap for her, in the same
way as her attention to me filled a need in me. A match made in heaven.
Philomena, or Minna, as we called her, remained a source of happiness and encouragement throughout my life. I was always welcome and treated like a precious gift. She smoked, but she outlived both of her sisters (taken in their 40s by cancer).
In her late 70s Minna was diagnosed with Alzheimer’s disease. Well, I thought, at least she lives, belittling her misfortune without much awareness.
The next time I saw her, her trademark happiness however seemed far away. She was crying bitterly because she had lost her hearing aid, a very expensive one, too. Suddenly her life seemed to revolve around retrieving things. She was spared the physical pain of her sisters, but she suffered severe mental torture.
She fortunately reached a happier stage as medication and care helped reduce the misery in her life, but the attention she needed was a huge toll to the family. Despite her memory loss, she seemed to vaguely recognise me; me, the ‘child’ that lived abroad and who rarely came to visit. She had not lost her warmth and happiness, or maybe she had just regained it after the bad patch I mentioned earlier.
Very recently I saw her again, almost unrecognisable: withdrawn, very unresponsive and almost reduced to basic functioning. Surprisingly, she could still read and when I came to see her for a second time her eyes shone as if she did recognise me. I spoke an emotional goodbye to her and her hand was shaky and excited as she listened to my speech. She even responded by talking, using words that didn’t fit exactly but which expressed an emotion similar to what one would expect from a loving aunt in such a situation.
With her loving kindness in mind I created Biddy, the mother in “Time to let Go”, a selfless, giving woman, who even in her illness manages to show her innate kindness. I know it would be wrong to praise her for a gift that many other patients do not have, through no fault of their own. Losing one’s memory and control of one’s life is a terrible thing that you can only understand when it happens to you.
“Time to Let Go” is partly meant as a tribute to my brave aunt and to the wonderful people who help making her life dignified and as happy as is possible.
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